Advancing awareness and care for endometriosis on EndoMarch Day

EndoMarch is globally recognised as the month to raise awareness for endometriosis —a chronic condition that affects 190 million women worldwide. This complex health challenge goes far beyond painful periods, impacting educational opportunities, career trajectories and often creates fertility issues. 

Endometriosis occurs when tissue similar to the uterine lining grows outside the womb, primarily in the pelvic cavity. For decades, women have faced a painful journey of dismissal and delayed diagnosis, with symptoms often minimised or misunderstood by healthcare providers. 

A turning point in diagnosis  

In 2022, professional bodies like ESHRE recognised specialised endometriosis ultrasound and MRI as valuable diagnostic tools, marking a significant breakthrough in the field. 

Building on this progress, the FIGO Committee on Reproductive Endocrinology and Infertility (REI) conducted a groundbreaking global survey in August 2024 to assess the use and knowledge of endometriosis imaging worldwide. This international study aimed to determine where these specialised scans are being utilised, identify the professional groups performing them and explore the barriers to their implementation. 

Key findings from the survey include: 

• 67% of respondents now incorporate imaging into their diagnostic process.
• Specialised scans show a 98% correlation with surgical findings when endometriosis is present.
• Even with a negative scan, there remains a 35% chance of endometriosis in symptomatic patients.
• The most predominant method of diagnosis was ultrasound, used by 77.8% of respondents.
• MRI was the next most common method at 41.4%, followed by surgery at 33.9%. (Respondents could select more than one method of diagnosis.)

The survey gathered over 400 responses from 68 countries, providing critical insights into the global adoption of endometriosis imaging. 

Endometriosis care is rapidly advancing with improved imaging techniques, innovative treatments, refined surgery and specialised reproductive interventions. Fertility preservation has also become a critical focus, with emerging options like egg freezing offering hope to those concerned about their reproductive futures. 

Endometriosis affects not just individuals, but entire support networks—partners, families, colleagues, and employers. The yellow ribbon of EndoMarch symbolises more than awareness; it represents a global commitment to understanding, supporting and empowering those living with this condition. 

A call to action 

This EndoMarch, we stand united in our mission: to ensure that individuals with endometriosis can continue their education, pursue their career goals, and lead full, vibrant lives. By raising awareness, supporting research, and championing compassionate care, we can transform the narrative around this challenging condition. 

Find out more about the FIGO Committee on Reproductive Endocrinology and Infertility.